Hubby took me to eye surgeon yesterday. It was another crazy experience!!
The dr doesn't want to do surgery on my eyes right now because of my extreme light sensitivity. I tried to explain it the best that I could. What I came up with is this.....
light feels like knives poking into my eyeball. Very painful. The eye surgeon thinks that I have some NEW underlying problem not related to Graves and is sending me to a cornea specialist. I will know more next week.
When I got home, I had a huge anxiety attack. I had my hopes up that my eyesight would be restored -- no double vision, blurriness or light issues-- within a few weeks with surgery. And the realization that I am facing yet another hurdle was too much for me to handle.
Thankfully mom keep my son for the night because the loud wailing and uncontrollable sobbing would have scared him for life ! hahaha

The muscle pain is incredible!! I hurt so bad. I have been trying otc meds and today tried a hot soak and then some biofreeze cream. it seemed to help for a few hours. But now i am wondering how i will be able to sleep......

My eyesight is worse now. I go the eye surgeon this Friday for a final consult. The double vision makes life unbearable. This post is so hard to put up. Before it was just dealing with blurriness and occasional double vision. Now the double vision is almost a constant issue. Hopefully the surgeon can explain my options to dh and me -in language we understand :)

Still dont' know anything about the pain in my muscles. The edno said that "its just graves" , while my gp thinks there might me other issues going on. I'm taking otc for the pain and am able to function on most days. I will deal with that more once eyes taken care of.

Endo also upped meds. Now on 224. he said highest was 300. Endo also told me that I was the WORST case of TED that he'd ever seen. That did make me feel special ~~~ hahahaha
He also said that i needed to exercise and lose some weight. i asked "how am i supposed to exercise when i can't get dressed b/c pain is so bad, or depression has me crying all day?"
His suggest was to get a trainer that could work with me....
I asked him if he was paying...... He looked at me funny, and i explained that we have lost our savings this past year to my health and that we still owe around 4k. NOT even considering the cost of the eye surgeries i'm looking at having. I think that endo's are used to people breaking down in the office, b/c he didn't act like it bothered him that i was hysterical.

I am still fighting the depression and anxiety. The anxiety attacks are getting more frequent, could be that i have been thinking about the eyes more ? ??

Please keep me in your prayers and let's all pray for a cure for Graves Disease!

I saw the dr on the 31st and my sed rate is still elevated. He wants me to stay off the lipitor for a few more weeks and retest, if the pain has not went away. :(
The joint pain is still there in my hands, wrists, shoulders, lower back and sometimes jaw. But the muscle pain has went away!!
My family has had the worst kind of virus. It has claimed us all for the past 5 days. Casey is on the upswing, and I have nothing left to give the porcelain throne. ~~~
This week I go back to GP, Eye DR, and ENDO.
I hope that I have more answers.........
Many thanks to all out there keeping me in prayers, I have been lifted up out of the depths of depression. I still am experiencing 'waves' of depression, but nothing like what i was going through!! God Bless You!!

IT FINALLY CAME !!!!!

i got the letter from my insurance that they have approved my eyelid retraction surgery.
However, because my tsh levels are not normal ~~~~ I am no longer a candidate :(
The depression has been horrible the last 2 weeks with this new info.
I go back to the eye specialist over in Nashville in Jan to discuss my options.
The overall pain in my joints has not went away (like the dr hoped).
I see him again after Christmas~~ we will see where that goes :(

May your Christmas be Blessed with Christ's Love and Peace

I have been struggling with muscle pain for the last 3 weeks or so. I had some bloodwork done last Thursday and no results yet. One thing the dr is thinking ~~ a reaction to the Lipitor meds that i'm on. so i'm off those right now. The overall ache has decreased, however the pain in my major joints is more pronounced. My lower back into my hips, my writs, my shoulders hurt all the time. i am using otc meds right now for the pain. it was so bad a few days ago that i resorted to a pain pill.
I am also struggling with my eyes. My right eye is differently turning in causing double vision. Right not its not to bad. I can force the eye to more back to a 'normal' position. The eye dr -- told me on Thursday that I need to go back to the specialist in Nashville to see about orbital decompression being a necessity. The crux of the matter is . . . I can't have surgery until my thyroid is under control. It is not. I have been working with GP to regulate. Next week, I will be contacting the endo to aggressively monitor the changes.
I am still dealing with the depression. And i am struggling to have a "normal" Christmas.

I have finally managed to pull myself out of bed and up the stairs to the pc! I've been struggling with depression (since I've had the sinus infection). Sometimes I think that life just goes on.... Where am I? I don't feel like a part of it anymore. My husband has been wonderful in how he has picked up and carried this family. My children have adjusted to the changes and don't act like they need me anymore. I just get so lonely.
I am thinking about curing Graves Disease....... What will it take??
I believe in miracles, so here's my prayer
Lord, forgive me for not turning to you for comfort--I know that you are there waiting for me. Lord, forgive me for not glorifying you in all -- I know that every time I question why, how come, i am not acknowledging your greatness. Lord, please cure me from Graves Disease. Just touch my body and remove each and every antibody that is wrecking my body, your temple. I know that you are the great physician and can do all things. I ask for forgiveness and peace and healing in your son's name . .... JESUS CHRIST. Amen
If you are reading this post please pray this prayer for me. God is a God of miracles!