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Saturday, May 29, 2010

My eyes are starting to "look" better. There is still swelling above my eyes. But most of the swelling has went down that was below my eye socket! My left eye still is worse than my right one. It still has lots of red streaks in the whites. But the right one has almost none. Everyday it is like a piece of me has been given back.
The emotions that go along with these changes are incredible!!
i have extremely high highs and very low lows. It is hard because I so badly want to be better and to be able to be "normal" and to participate in my son's life.
People around me don't understand the lows.
I try to explain..... but what is there to say ? ? I don't get it!!

Tuesday, May 25, 2010

I have my nest 2 visits to Mayo. June 29 & August 24.
I am so excited because there is improvement to my eyes!
I have had a rough time of it with my vision. It is almost like the "tunnel" vision that I had when my eyes started getting bad. I also have sharp pains that lead to migraines and then waves of nausea. and the double vision is more pronounced that before.... I know that even with these symptoms, I am getting better
~~I go back to GP in July, but if the headaches get much worse I will have to see him sooner.

Saturday, May 22, 2010

Last night my daughter graduated high school. I am glad that she made it! She is onto the next chapter of her life.
It was horrible, my threw up because of my vision going into "tunnel" mode. Then I got dizzy and had to hold onto someone. My eyes seem to be getting better but the "waves" of tunnel vision and blurriness are knocking me down!

Thursday, May 20, 2010

I am back home and exhausted. My eyes are very tired. However, my eyesight is improving by leaps and bounds. I am experiencing small setbacks like color distinction, a dizziness when I strain to make out something. I am healing. It is AMAZING and WONDERFUL.

Sunday, May 16, 2010

I am at my mom's house and getting ready for bed! I am soooooo ready to go to Mayo for the next step in my treatment! I am getting better. A little at a time. I think after the next infusion I am even going to reach a new level of healing.
PRAISE GOD for the healing that I have already experienced
PRAISE GOD for the people at "Mercy Medical Airlift" they are helping to get me to this appointment at Mayo.
I love my hubby! I have been very difficult this last few days and he has been more understanding and we continue to grow closer~ sometimes after a misunderstanding it is easier to see the "true" emotions we have for each other.....
PRAISE GOD that I have a family that loves me and supports this treatment
I will post more when I return
~~Keep praying for a healing because GOD can and DOES perform MIRACLES today!

Thursday, May 13, 2010

I am waiting getting ready to head back to Mayo for the 2nd infusion.
I am healing. I was able to "track a mosquito" late yesterday afternoon. I have not been able to follow something that small with my eye for a looonnnggg time!
Today there is a bit of swelling on the upper eye. Maybe sinus? Maybe dust?
I pray every day for the healing to continue and I am thankful for this BLESSING!

Tuesday, May 11, 2010

Well folks here it is ~~~~~~
I am feeling better, a lot of the swelling over my eyes has gone down, and I am able to wear my regular glasses!!! (I usually wear dark prescription glasses, even in the house)
About 50% of the redness is gone from my eyes and I was able to shop for groceries last night by myself (the first time in over a year!!) Hubby still had to drive me, and he walked around the store but I still felt a sense of freedom that I'd forgotten I was missing.
I spent most of the day with my mom. She took me to lunch at the Gibson Girls Luncheonette. I'd been wanting to try out this new "girly" cafe and was happy to share that with her! Then we went junkin at some of the local goodwill stores. I was floating to be out of the house and enjoying life again.
~~~~ After all that yesterday, I was exhausted.
PRAISE GOD for I know that I have some kind of HEALING
I can't wait for the next infusion treatment.
I have not felt this much hope in a long time...........

Thursday, May 6, 2010

I made it into the study!!
I got the first infusion on Tuesday and will be returning in 2 weeks for the 2nd one. I am keeping very positive and believing that I got the durg not the plecebo. But If I did get the plecebo, I believe that my cure is still going to happen.
I know that there are many people out there praying

Randy & I were not able to fly due to the weather, so we jumped into the stand-by car and off we went. 16 hours later we got to Rochester! After checking into hotel, we got about 5 hours sleep.

On Monday, I had testing and dr appointments for 8 am - 4pm. I was so hungry. After eating and a quick shower I feel into a deep sleep. I don't think i moved!
On Tuesday, I go the infusion, we got there at 7am but it didn't start until 8:30 - and it went until 2:30. Then off to see Dr Stan and another test. We decided to start our drive back home and try to drive 4-6 hours so that it won't be too hard on us.

Because we drove, Randy and i got to see part of our country that we have never been to.
We saw (from road) Illinois, Iowa, Indiana, Wisconsin, & Minnesota. It is amazing to see all that GOD created.

We wanted to let everyone know that the people at Mayo were great. Everyone that helped us in Rochester went so far beyond what we expected, that we felt blessed and well cared for.

Saturday, May 1, 2010

Family & Friends ~~
Randy and I are so excited to be given this oppurtunity. We are packing and getting the house clean. Yes Mamaw, i have clean underwear!! Casey is already with Grandparent's and just a bit of laundry left and floors on main to be swept, moped & vaccumed! All in all~~ we are right on schedule.
I wanted to let everyone know that regaurdless of what happens on this trip... Randy & I believe in a MIGHTLY AWESOME GOD who can and does accomplish MIRACLES.
Much love goes out to our family and friends that have kept me in thier prayers over the last 16 months. I am blessed to have each and everyone of you in my lives!
When we get back I will post about the trip to Mayo.