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Friday, February 26, 2010

Wahoooooo !!

I don't have anything wrong with my cornea. Specialist believes that it is Graves related, no damage to any part of my eyes. Referred me back to eye surgeon with the go ahead for surgery.

Going to GP today and hopefully will be getting new insight ~~

Wednesday, February 24, 2010

I go to the cornea specialist in a few hours........
I was able to get an earlier appointment and now I am scared of finding out......
Please pray for me

Wednesday, February 10, 2010

I have an appointment with cornea specialist Dr David Harris for March 24th.
It is so frustrating.........
I have to have 3 corrective eye surgeries in order to MAYBE correct the double vision & blurriness. And yet, I can't do anything until this NEW problem is checked out.
Meanwhile, my muscles still ache and i have been off the lipitor now for over 2 months -- so it should be completely out of my system. My emotions have been upside down and sideways.
Is there really a NORMAL?
I have been struggling with not laying down these burdens and turning them over to God.
I know that He will provide me with comfort and rest and He will guide me.
But it is hard knowing something and yet .......
I'm still hanging on to the problems... why?????

Saturday, February 6, 2010

Hubby took me to eye surgeon yesterday. It was another crazy experience!!
The dr doesn't want to do surgery on my eyes right now because of my extreme light sensitivity. I tried to explain it the best that I could. What I came up with is this.....
light feels like knives poking into my eyeball. Very painful. The eye surgeon thinks that I have some NEW underlying problem not related to Graves and is sending me to a cornea specialist. I will know more next week.
When I got home, I had a huge anxiety attack. I had my hopes up that my eyesight would be restored -- no double vision, blurriness or light issues-- within a few weeks with surgery. And the realization that I am facing yet another hurdle was too much for me to handle.
Thankfully mom keep my son for the night because the loud wailing and uncontrollable sobbing would have scared him for life ! hahaha

Wednesday, February 3, 2010

The muscle pain is incredible!! I hurt so bad. I have been trying otc meds and today tried a hot soak and then some biofreeze cream. it seemed to help for a few hours. But now i am wondering how i will be able to sleep......

Saturday, January 30, 2010

My eyesight is worse now. I go the eye surgeon this Friday for a final consult. The double vision makes life unbearable. This post is so hard to put up. Before it was just dealing with blurriness and occasional double vision. Now the double vision is almost a constant issue. Hopefully the surgeon can explain my options to dh and me -in language we understand :)

Still dont' know anything about the pain in my muscles. The edno said that "its just graves" , while my gp thinks there might me other issues going on. I'm taking otc for the pain and am able to function on most days. I will deal with that more once eyes taken care of.

Endo also upped meds. Now on 224. he said highest was 300. Endo also told me that I was the WORST case of TED that he'd ever seen. That did make me feel special ~~~ hahahaha
He also said that i needed to exercise and lose some weight. i asked "how am i supposed to exercise when i can't get dressed b/c pain is so bad, or depression has me crying all day?"
His suggest was to get a trainer that could work with me....
I asked him if he was paying...... He looked at me funny, and i explained that we have lost our savings this past year to my health and that we still owe around 4k. NOT even considering the cost of the eye surgeries i'm looking at having. I think that endo's are used to people breaking down in the office, b/c he didn't act like it bothered him that i was hysterical.

I am still fighting the depression and anxiety. The anxiety attacks are getting more frequent, could be that i have been thinking about the eyes more ? ??

Please keep me in your prayers and let's all pray for a cure for Graves Disease!

Monday, January 11, 2010

I saw the dr on the 31st and my sed rate is still elevated. He wants me to stay off the lipitor for a few more weeks and retest, if the pain has not went away. :(
The joint pain is still there in my hands, wrists, shoulders, lower back and sometimes jaw. But the muscle pain has went away!!
My family has had the worst kind of virus. It has claimed us all for the past 5 days. Casey is on the upswing, and I have nothing left to give the porcelain throne. ~~~
This week I go back to GP, Eye DR, and ENDO.
I hope that I have more answers.........
Many thanks to all out there keeping me in prayers, I have been lifted up out of the depths of depression. I still am experiencing 'waves' of depression, but nothing like what i was going through!! God Bless You!!